I was diagnosed with Fuchs dystrophy after cataract surgery from a highly regarded surgeon at Wilmer eye in Maryland. After taking the patch off from the surgery and I could not see it was just a matter fact – oh you have Fuchs dystrophy. Again, I could not see. I was devastated, confused and emotional wreck.
I came home and got online and found the Corneal Dystrophy association, Fuchs Friends. After I was accepted as a member, the founder himself, Bob Bellizzi, posted to my post and calmed me down and gave me help to start figuring out what was going on with my eyesight. I got no help from the highly regarded surgeon at Wilmer. And I should not have had cataract surgery without knowing this diagnosis before hand. I do believe because of my age the Surgeon felt it was going to be a regular surgery, at the time I was 56.
The corneal dystrophy foundation has advised and help me tremendously to getting the best care for my eyes. I literally read every post every single day and am continually lucky to learn other peoples experiences and I’m very grateful that this group is there THANK YOU from the bottom of my heart for the information and help recieved! To me, it’s been immeasurable and irreplaceable!!!!