Patient Stories

Experience some of our featured stories from volunteers, donors and supporters.

Esta’s Story – Please don’t wait!

I was born with amblyopia left eye and astigmatism, and decades later developed cataracts and floaters. Despite Ophthalmic exams, I went undiagnosed with my vision declining to legally blind in left eye and severe symptoms effecting ...

Sarah’s Story

I am 31 years old and was diagnosed with Fuchs' Dystrophy about 4 years ago. It was a shocking diagnosis to both my doctor and me. I was told at 27 years old that I will lose my quality of life because my vision will go, and that I ...

Skipster’s Story

I was diagnosed with Fuchs Corneal Dystrophy (FCD) in 2008 at the age of 56. I learned that it was a gradually progressive disease which, eventually, would likely lead to significant visual deterioration and need to be addressed with ...

Seacynth’s Story

About five years ago, I was diagnosed with Fuchs’ Dystrophy. Needless to say, I was terrified of going blind. I was so upset, that I couldn’t even google my diagnosis. I was lucky to have a friend offer to do research for me ...

Epithelial Basement Membrane Dystrophy (EBMD)

Epithelial Basement Membrane Dystrophy (EBMD), is the most common of the corneal dystrophies. Ii is also known as Map-Dot-Fingerprint Dystrophy and Anterior Basement Membrane Dystrophy (ABMD), .Since it was first described by ...
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My deepest condolences to you and your entire family. Bob was truly an extraordinary individual, leaving behind a remarkable legacy that has touched the lives of countless people and continues to do so. His dedication brought Fuchs dystrophy to the forefront of awareness for those affected by this condition.  Our collaborative symposium, both at Duke 15 years ago and in San Diego nearly 10 years ago, were made possible by his tireless efforts alongside yours. Bob’s leadership in gathering DNA from people for our genetics research was instrumental in advancing our understanding of the condition. He embodied the spirit of making the world a better place, and Bob undeniably achieved that goal.  Personally, I will deeply miss his friendship, his infectious enthusiasm, and his unwavering commitment to unraveling the complexities of Fuchs dystrophy;  His laughter and can-do attitude were truly infectious. While we mourn his passing, Bob’s legacy will endure.  I extend heartfelt gratitude to both Bob and you for everything you have accomplished and continue to do in service of others.

Stuart I. Brown MD Chair in Ophthalmology in Memory of Donald P. Shiley Professor of Ophthalmology Chief of Cornea & Refractive Surgery Vice Chair of Ophthalmology Shiley Eye Institute University of California, San Diego

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